I recently came across some research that I have never heard about before. Apparently CCSVI is common is those of us with MS. Unfortunately many people who have one of the CCSVI areas opened by balloons in a said non-invasive procedure, have found the procedure worthwhile but need to have it done again in a matter of months. I get that many of those patients would be willing to go through the procedure again but this is not possible. A follow-up procedure needs to be devised for long term care. Funding for this research has not been attained to my knowledge.
Further interesting to me was the fact that CCSVI Symptoms mock MS Symptoms.
If research could find a follow-up procedure for CCSVI — I wonder if we could live a more comfortable life with better blood flow??, Could this procedure be more than that?
Source: http://www.jcbfm.com (Article: Anomalous Venous Blood Flow and Iron Deposition In Multiple Sclerosis)
A group of Italian researchers, led by Dr Paolo Zamboni, discovered that, in many persons with multiple sclerosis, the veins which act as the main drainage pathways for blood flowing from the brain are substantially narrowed and even blocked. These veins include the jugular veins, veins along the spinal column, and other veins such as the azygous vein. The Italian Researchers labeled this compromised venous drainage as “chronic cerebrospinal venous insufficiency” or CCSVI.
The Italian researchers also documented that impaired venous drainage from the brain caused venous blood to flow back into the brain which resulted in iron deposition and inflammation of the blood-brain barrier (BBB). A compromised BBB has long been known to be part of the MS disease process.
On the basis of these findings, the researchers reasonably concluded that CCSVI was quite possibly a causal factor of MS and that the restoration of proper blood flow from the brain may well be of significant therapeutic value.
Can CCSVI be treated?
It is stated that the Italian researchers developed a treatment to relieve the venous drainage challenges. First, the problematic veins are identified by venography. Then, balloon angioplasty is used to open up the problematic veins. Research says the procedure is relatively non-invasive and is done in a out patient hospital visit under local anesthesia.
Unfortunately, research found that, for many patients, the impaired venous drainage returned within a few months. Currently an effective treatment which resolves and maintains proper flow for all patients has not yet been developed.
Is CCSVI Treatment of value?
Apparently to researchers the critical question of the benefit of restoring proper blood flow for persons with MS has yet to be answered. A few small trials have been put into place but the results did not answer the question of BENEFIT because many of the treated persons DID NOT HAVE PROPER BLOOD FLOW FOR A VERY LENGTHY AMOUNT OF TIME.
None-the-less, apparently there are many well documented accounts of persons with MS experiencing major benefits once their blood flow was restored and maintained.
See — www.jcbfm.com (Article: Anomalous Venous Blood Flow and Iron Deposition In Multiple Sclerosis-12 pages)
Symptoms of CCSVI——
People diagnosed with CCSVI typically have symptoms of MS. These include:
• muscle cramping
• vision problems
• muscle paralysis
• “pins and needles” sensations
CCSVI can cause additional symptoms, as well, including:
• mental confusion
• severe headaches
• facial edema
Source: National Multiple Sclerosis Society
Has anybody heard of this idea before?
Does anybody know anyone that has had this procedure?
Why do you think the MS Society says this procedure has no evident benefits?